ON THE ROAD AGAIN

So we packed up, yet again and drove to our new hotel in Richmond VA.  It is a very nice hotel, with better mirrors and lighting then the other hotels we have been in.  I only mention this as I am now realizing the need to buy a tweezer for some unsightly facial hairs.  (TM411?)

So here's the latest update:

 I spoke with the head nurse at the orthopedic surgeons's office that Dr Sandhu referred Shira to in San Diego for scoliosis surgery.  The nurse said that the Dr does have EDS experience but she stated  that they always refer scoliosis patients who have a Tethered Cord (such as Shira) to a neurosurgeon to have TC release before considering scoliosis surgery as releasing the TC  can helps the scoliosis. (Exactly what I thought, but what do I know, I am only a mom)

I am cautiously hopeful about our appointment with Dr Tye tomorrow.

Our wonderful friend Monica sent me this quote by Randy Pausch this morning and while I was reading it, the lyrics on the radio were "Don't ever look back"

The brick walls are there for a reason. The brick walls are not there to keep us out. The brick walls are there to give us a chance to show how badly we want something. Because the brick walls are there to stop the people who don’t want it badly enough. They’re there to stop the other people.”

Thank you all for your love, encouragement and help as we have faced our share of brick walls!

hugs