So this morning we went to Georgetown University Hospital and dropped off Shira's MRI's and the pre/post surgery info we have. We met briefly with Jay, Dr Sandhu's assistant, who we also gave a bag of Lindt chocolate so she would like us and to keep me from eating them. She said we would hear back by the end of the day. About 15 minutes ago, Jay called to say that Dr Sandhu wanted to see Shira Monday morning. He would fit her in even though he is totally booked. So we will be there at 8:45 Monday morning and hopefully get some answers. (As I type this the song that is playing on the computer is "Keep Holding On" hmm, I think there is a message in that for me.)
We are making the best of our Waiting in Maryland, and have made some wonderful new friends Our new friends are also patients of Dr Henderson and are here from, Boston, NY and San Diego for appointments with Dr Henderson. We had a wonderful evening last night hanging our together and it was especially great for Shira to connect with more kids and adults who have some of the same medical challenges as Shira.
Tomorrow we will move hotels, our 3rd in one week. We are going to stay in Georgetown, which seems like a cool area to walk around and is closer to the hospital where Shira will hopefully have surgery.
Tomorrow evening we will get together with Mike's cousin David and his daughter Sarah, who is a year older then Shira and who we adore. On Sunday we will get together with Paul Portner, the son of one of Dad's best friends/collegues from Memphis. I remember Paul as a kid and have been a part of his marriage and the birth of his 2 sons through Dr Portner and his wife Mary's pictures every time we would see them. We are all looking forward to being with them.
Even though we have not even been here a week, we have so many people on Team Shira. Sue Penn, a dear friend and Director if Education has put us in touch with amazing Drs at Johns Hopkins so we have yet another Plan B if we need. She also connected us with friends from a sister synagogue here, and I get regular phone calls to see if we need anything. It is wonderful to have so much support when we are so far from home.
hugs and have a wonderful week-end
2 comments:
Glad to see things are looking up :)
Appreciate the blogs, we read them and it is good to be able to keep up with how things are going. We read them even if we dont respond everyday. Navigating the medical system does seems frustrating, but it sounds like you are making progress. The girls are keeping in touch. So glad there is family that loves you there, and that you are making friends. We miss you of course. Ive seen the dogs walking around the neighborhood-I think Angel recognizes King and I as her eyes lit up and she pulled on the leash when she saw us across the street. Georgetown is one of our favorite cities-especially Terry. Thinking of you XXO Amy, Terry and Claire
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