So Shira is truly my hero. She has just been through hell and back, is still experiencing crazy pain, and she has a smile on her face and looks great. Shira will have 2 follow up Dr appointments this Friday and as long as everything goes ok, we will drive on Friday afternoon to Maryland where we will stay for one night. Sitting for any length of time is hard for Shira, so we will make the 2-3 hour drive on Friday as we are booked on a flight out of DC on Saturday evening. Shira has been trying really hard not to take the pain meds, but will definitely need to for the long flight home. Shira is walking more and more each day, which is wonderful. The Physical Therapist said it will be at least 12 weeks before Shira will gain her strength back.
The Doctor told Shira "No BLT" bending, lifting or twisting, which is now her excuse for not picking clothes up off the floor or reaching to get her drink etc. I am hoping to enlist some of her friends to help out when we are home, as I may need a brief break from being at her beck and call for the past 5 weeks!
I will add some pictures since I am so proud that I have figured out how to upload photos from my phone to my computer. It truly is the little things in life!
Hugs
 |
| Shira's Incision Site The first neurosurgeon told Shira that she would barely know he had made an incision on her back, Guess this Neurosurgeon who did the surgery didn't get the memo to make it a small incision. |
A Party in the PICU
The 4 year old in the bed had the same surgery as Shira a week later. He also has EDS and had an occult tethered cord so we became best friends
He is sedated and on oxygen, but we wanted him to know that his friends, Shira, Roman and Eden had visited. Happy to report, he went home after 4 days and is doing well.
Shira being discharged!!
Shira arriving at the Hotel Jefferson after 10 days in the hospital!
Shira and Dad at Brunch at Can Can restaurant the Sunday after discharge from hospital
2 comments:
Shira is totally a hero - You are totally my hero as caregiver, wife, mother and every other title under the sun. Thank you ever so much for sharing this journey. You epitomize yes we can. Keeping you and yours in thoughts and prayers always
Count us in for any help you need.
Post a Comment