WHAT DOESN'T KILL YOU MAKES YOU STRONGER

We have had a very rough couple of days.

Shira was able to stand up and take 3 steps yesterday which was great.  She is healing very well from the surgery, also very good.  However, all of the stress on her body has wreaked havoc on her POTS and Ehlers Danlos.  She has been horribly dizzy and nauseous  and has been having multiple syncope convulsions.  Her joints have also been popping out a lot and this morning her shoulders were doing what Shira would call "the involuntary tango"  Her shoulder dislocated while the ICU Drs were rounding with RN's and med students and they all cringed when Shira had me help her put it back in :)

Shira hasn't been able to get out of bed today as she has been far too dizzy and nauseous.  Today is the last day of the IV med she has been taking to help her blood clot. This med has a side effect of nausea, dizziness, feeling like you want to throw up, muscle pain etc.,   I hoping that stopping this will be the beginning of her feeling better.  She was able to have one of her 2 IVs pulled, also good, but the other IV was no longer working, so they had to pull it also and start yet another IV, not so good.  She is also switching to oral pain meds, which is good and she still has her pump to use that can give her an IV dose of pain med for break through pain.

I am more positive then ever that this is where Shira was meant to have surgery, as we are now having consults with a cardiologist and a nephrologist who are both knowledgeable and fascinated by POTS.  as well as  a pediatric neurologist who is knowledgeable in Ehlers Danlos.  While Shira's Dr at home is great, she doesn't have a team of specialist who work together looking at her issues and try to problem solve together.  I feel this is such a silver lining for us to be able to get while we are here in Richmond.

They say "what doesn't kill you makes you stronger" and as Shira would say, she should be able to bench press a buick by now!

I hope tomorrow will be a better day for Shira, as she so needs it.  She wants out of her so badly.

Thank you again, for all your support, love, concern and prayers

Hugs